A disability is a condition or function judged to be significantly impaired
relative to the usual standard of an individual or group. The term is used to
refer to individual functioning, including physical impairment, sensory
impairment, cognitive impairment, intellectual impairment, mental illness, and
various types of chronic disease.
Disability is conceptualized as being a multidimensional experience for the
person involved. There may be effects on organs or body parts and there may be
effects on a person's participation in areas of life. Correspondingly, three
dimensions of disability are recognized in International Classification of
Functioning, Disability and Health (ICF): body structure and function (and
impairment thereof), activity (and activity restrictions) and participation (and
participation restrictions.) The classification also recognizes the role of
physical and social environmental factors in affecting disability outcomes.
The ICF is World Health Organization's (WHO's) framework for measuring health
and disability at both individual and population levels. The ICF was officially
endorsed by all 191 WHO Member States in the Fifty-fourth World Health Assembly
on 22 May 2001(resolution WHA 54.21). Unlike its predecessor, which was endorsed
for field trail purposes only, the ICF was endorsed for use in Member States as
the international standard to describe and measure health and disability.
The ICF puts the notions of "health" and "disability" in a new light. It
acknowledges that every human being can experience a decrement in health and
thereby experience some degree of disability. Disability isn't something that
only happens to a minority of humanity. The ICF thus "mainstreams" the
experience of disability and recognizes it as a universal human experience. By
shifting the focus from cause to impact it places all health conditions on an
equal footing allowing them to be compared using a common metric – the ruler of
health and disability. Furthermore ICF takes into account the social aspects of
disability and doesn't see disability only as a "medical" or "biological"
dysfunction. By including Contextual Factors, in which environmental factors are
listed ICF allows to records the impact of the environment on the person's
functioning.
The Medical Model
The medical model is presented as viewing disability as a problem of the person,
directly caused by disease, trauma, or other health condition which therefore
requires sustained medical care provided in the form of individual treatment by
professionals. In the medical model, management of the disability is aimed at a
"cure," or the individual’s adjustment and behavioral change that would lead to
an "almost-cure" or effective cure. In the medical model, medical care is viewed
as the main issue, and at the political level, the principal response is that of
modifying or reforming healthcare policy.
The Social Model
The social model of disability sees the issue of "disability" as a socially
created problem and a matter of the full integration of individuals into
society. In this model, disability is not an attribute of an individual, but
rather a complex collection of conditions, many of which are created by the
social environment. Hence, the management of the problem requires social action
and is the collective responsibility of society at large to make the
environmental modifications necessary for the full participation of people with
disabilities in all areas of social life. The issue is both cultural and
ideological, requiring individual, community, and large-scale social change.
From this perspective, equal access for someone with an impairment/disability is
a human rights issue of major concern.
The Market Model
The market model of disability is a new model that builds on the social model in
recognizing people with disabilities and their Stakeholders represent a large
group of consumers, employees and voters. This model looks to personal identity
to define disability and empowers people to chart their own destiny in everyday
life, with a particular focus on economic empowerment. This model makes no
judgments about ability, focusing on tangible and measurable results. Its mantra
is "results, at all levels, create value". By this model, based on U.S. Census
data, there are 1.2 billion people in the world who consider themselves to have
a disability. An additional two billion people are considered Stakeholders in
disability (family/friends/employers), and when combined to the number of people
without disabilities, represents 53% of the population. This model states that,
due to the size of the demographic, companies and governments will serve the
desires, pushed by demand as the message becomes prevalent in the cultural
mainstream.
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Types of disabilities include various physical and mental impairments that can
hamper or reduce a person's ability to carry out their day to day activities.
These impairments can be termed as disability of the person to do his or her day
to day activities.
These impairments can be termed as disability of the person to do his day to day
activities as previously. A disability can be broken down into a number of more
specific categories, which include the following:
Mobility Disability
Mobility disabilities can stem from a wide range of causes and be permanent,
intermittent or temporary. Among the most common permanent disorders are
musculoskeletal disabilities such as partial or total paralysis, amputation or
severe spinal injury, types of arthritis, muscular dystrophy, multiple sclerosis
(MS), head injury and cerebral palsy. Additionally, conditions such as
respiratory and cardiac diseases may also impair mobility. Any of these
conditions may impair the strength, speed, endurance, coordination and dexterity
necessary for proper hand function.
Vision Disability
You are considered to have an eyesight disability if you don’t have normal
vision even if you wear eyeglasses or contact lenses. Visual impairment may be
caused by several eye diseases like age related muscular degeneration,
cataracts, and more. There are vision impairments that can be treated medically,
but there are some that can’t be corrected medically after accidents, inherited
ocular disorders, or disease damage.
Hearing Disability
Hearing disabilities includes people that are completely or partially deaf.
People who are partially deaf can often use hearing aids to assist their
hearing. Deafness can be evident at birth or occur later in life from several
biologic causes, for example Meningitis can damage the auditory nerve or the
cochlea.
Communication Disability
This is defined as impairment in the processes of speech, language or hearing.
Cognitive Disability
Cognition is another word for thinking. It includes many different functions
including our abilities to pay attention, learn and retain information, solve
problems, and use language to express thoughts. Cognitive disability refers to
people with dyslexia, a brain-based type of learning disability that
specifically impairs your ability to read, and other learning difficulties.
Learning problems, on the other hand, differs from someone who has a serious
mental impairment.
Psychological Disorders
Affective Disorders - Disorders of mood or feeling states either short or long
term. Mental Health Impairment is the term used to describe people who have
experienced psychiatric problems or illness.
Personality Disorders - Defined as deeply inadequate patterns of behavior and
thought of sufficient severity to cause significant impairment to day-to-day
activities.
Invisible Disabilities
Invisible disabilities are those that aren't immediately apparent to others.
It's estimated that 10% of people in the U.S. have a medical condition
considered a type of invisible disability.
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Expanded Disability Status Scale
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The Kurtzke Expanded Disability Status Scale (EDSS) is used as a measure of
disease progression by assigning a severity score (0-10) to the patient's
clinical status. Although the scale doesn't correspond linearly to common
progression points for many patients, its widespread use and ease of
implementation allow its use as a standardization measure for clinical trials.
Today the EDSS is the gold standard for measuring impairment in MS.
The Functional Systems (FS) are the main 8 parts of the CNS regulating body
functions.
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Pyramidal - weakness or difficulty moving limbs |
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Cerebellar - coordination loss or tremor |
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Brainstem - speech and swallowing problems |
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Sensory - touch and pain, numbness or loss of sensations |
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Bowel/bladder - the abnormal functioning of |
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Visual - loss of function |
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Cerebral - mental function loss |
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Other - any other neurological findings due to MS |
Scores that range from 1.0 to 4.5 refer to patients who are fully ambulatory.
Scores that are 5.0 to 9.5 indicate an impairment.
Enlarge by passing over or clicking
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Expanded Disability Status Scale (EDSS): |
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0.5 |
Normal neurologic examination (all grades 0 in FS; cerebral grade 1) |
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1.0 |
No disability, minimal signs in one FS (i.e., one grade 1 excluding cerebral grade 1) |
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1.5 |
No disability, minimal signs in more than one FS (more than one grade 1 excluding cerebral grade 1) |
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2.0 |
Minimal disability in one FS (one FS grade 2, others 0 or 1) |
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2.5 |
Minimal disability in two FS (two FS grade 2, others 0 or 1) |
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3.0 |
Moderate disability in one FS (one FS grade 3, others 0 or 1), or mild
disability in three or four FS (three or four FS grade 2, others 0 or 1) |
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3.5 |
Fully ambulatory but with moderate disability in one FS (one grade 3 and
one or two FS grade 2) or two FS grade 3, others 0 or 1, or five FS
grade 2, others 0 or 1 |
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4.0 |
Fully ambulatory without aid, self-sufficient, up and about some 12 hours
a day despite relatively severe disability consisting of one FS grade 4
(others 0 or 1), or combinations of lesser grades exceeding limits of previous
steps; able to walk without aid or rest some 500 meters (0.3 miles) |
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4.5 |
Fully ambulatory without aid, up and about much of the day, able to work
a full day, may otherwise have some limitation of full activity or
require minimal assistance; characterized by relatively severe
disability, usually consisting of one FS grade 4 (others 0 or 1) or
combinations of lesser grades exceeding limits of previous steps; able
to walk without aid or rest for some 300 meters (975 ft) |
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5.0 |
Ambulatory without aid or rest for about 200 meters (650 feet); disability severe
enough to impair full daily activities (i.e., to work a full day without special
provisions); usual FS equivalents are one grade 5 alone, others 0 or 1, or
combinations of lesser grades usually exceeding specifications for step 4.0 |
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5.5 |
Ambulatory without aid or rest for about 100 meters (325 ft); disability
severe enough to impair full daily activities; usual FS equivalents are
one grade 5 alone, others 0 or 1, or combinations of lesser grades
usually exceeding specifications for step 4.0 |
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6.0 |
Intermittent or constant unilateral assistance (cane, crutch, brace)
required to walk about 100 meters (325 ft) with or without resting;
usual FS equivalents are combinations with more than two FS grade 3+ |
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6.5 |
Constant bilateral assistance (canes, crutches, braces) required to walk
about 20 meters (65 ft); usual FS equivalents are combinations with more
than two FS grade 3+ |
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7.0 |
Unable to walk beyond about 5 meters (16 ft) even with aid, essentially
restricted to wheelchair; wheels self in standard wheelchair a full day
and transfers alone; up and about in wheelchair some 12 hours a day;
usual FS equivalents are combinations with more than one FS grade 4+;
very rarely pyramidal grade 5 alone |
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7.5 |
Unable to take more than a few steps; restricted to wheelchair; may need
aid in transfers, wheels self but cannot carry on in standard wheelchair
a full day; may require motorized wheelchair; usual FS equivalents are
combinations with more than one FS grade 4+ |
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8.0 |
Essentially restricted to bed or chair or perambulated in wheelchair;
but may be out of bed much of the day; retains many self-care functions;
generally has effective use of arms; usual FS equivalents are
combinations, generally grade 4+ in several systems |
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8.5 |
Essentially restricted to bed for much of the day; has some effective
use of arm(s); retains some self-care functions; usual FS equivalents
are combinations, generally grade 4+ in several systems |
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9.0 |
Helpless bed patient; can communicate and eat; usual FS equivalents are
combinations, mostly grade 4 |
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9.5 |
Totally helpless bed patient; unable to communicate effectively or
eat/swallow; usual FS equivalents are combinations, almost all grade 4+ |
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10 |
Death due to MS |
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Fatigue Severity Scale (FSS)
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The Fatigue Severity Scale (FSS) is a method of evaluating the impact of fatigue
on a person. This won't determine a degree of disability but rather provide
information that can be used to make that determination at a later time.
The FSS is a short questionnaire that requires the individual to rate their
level of fatigue. The questionnaire contains nine statements that rate the
severity of your fatigue symptoms. Each statement must be read and then circle a
number from 1 to 7, based on how accurately it reflects the persons condition
during the past week and the extent to which they agree or disagree that the
statement applies to them.
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During the past week: |
< Disagree | Agree > |
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My motivation is lower when I am fatigued. |
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5 |
6 |
7 |
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Exercise brings on my fatigue. |
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5 |
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7 |
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I am easily fatigued. |
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5 |
6 |
7 |
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Fatigue interferes with my physical functioning. |
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5 |
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7 |
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Fatigue causes frequent problems for me. |
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5 |
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7 |
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My fatigue prevents sustained physical functioning. |
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5 |
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7 |
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Fatigue interferes with carrying out certain duties and
responsibilities. |
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5 |
6 |
7 |
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Fatigue is among my three most disabling symptoms. |
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7 |
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Fatigue interferes with my work, family, or social life. |
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5 |
6 |
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Total Score: |
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Once the questionnaire has been completed, then score the results and evaluate
the level of fatigue. Simply add all the numbers you circled to get the total
score. A total score of less than 36 suggests that one may not be suffering from
fatigue. A total score of 36 or more suggests that the individual may need
further evaluation by a physician.
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